Tuesday, 11 September 2018

Epilogue one

Master of puppets. I'm pulling your strings. Twisting your mind and smashing your dreams
Master of puppets - Metallica

Anatomy of a chronic, life threatening, disease

Our ideas of disease fall into a few archetypes. There’s those you get, are treated for and recover. There’s those you get, deteriorate and die. There’s infectious ones, hereditary ones and lifestyle induced ones. There’s disability. Myeloma is no one of those things. In particular, no matter how well it is treated, how well I look, how upbeat I am, it will never be cured and it is always lurking there, promising to lay me low and eventually kill me. I find that hard to acknowledge and accept. Other people – who have usually spent a lot less time thinking about it than me – find it harder. So I’m still aware, if I end off talking disease to someone for the first time, that they are fishing around for cues of a happy ending, that I have some kind of endpoint to head for beyond which I will be cured. And I don’t, because I won’t.

In the first few weeks of my diagnosis I was very fortunate to find an online group of “under 50s” (I was 39), whose company provided me some reassurance and solace. I am still grateful for their friendship and companionship. They showed me that life can go on, and helped me come to terms with a disease that might well just lurk about causing me problems and threatening to kill me, for a very long time. Among that group, though, I also saw the stark reality of what myeloma is capable of. I greatly miss those friends who have died, even though I think our rate of dying is slowing up which must be a consequence of better treatment options. But Wendy, Helen, and more, I will not forget you.

Every day, some other poor soul, sat with a doctor, discovers that (s)he has myeloma. And you aren’t prepared for it because until the bus hits you, you’ve never been run over before. Witnessing someone else getting run over is not the same. Maybe one learns a bit by the experiences of those close by. In that sense maybe dialm serves to shield a few people from a little of the shock that will come to most of us when we are faced with something potentially deadly or disabling. But honestly, I doubt it. I think that shock retains its impact the day it suddenly applies to you.

But I do think it helps to have a broader understanding of disease. Our ageing society, and the effect of medicine in defeating many infectious diseases, means that many more of the reasons we will find ourselves in front of the doctor will share some attributes with myeloma. Chronic disease probably means symptoms that fluctuate in severity. It probably means treatment that changes over time. It probably means an amount of cumulative disability. That's reality folks! My own story is not really anything much to write home about.

5 comments:

  1. I agree with everything you sad, but I have to (respectfully) disagree with one comment: "My own story is not really anything much to write home about."

    From where I sit, your story is one of brutal honesty, humanity, bravery and humility. I found it of immense use to (a) know how you and your family is doing, (b) how incredible smart medicine has become, and (c) to know your kicking this thing on its a**e. I understand your motivations for finding an appropriate moment to end the story (for now). But please know that - to me - this blog was never "anything much to write home about". It very much was! So thank you!

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  2. I find something in herbal medicine good to share on here with anyone suffering from the disease such as HIV, Herpes, Hepatitis or Chronic Lyme Disease,Parkinson's disease,Schizophrenia,Lung Cancer,Breast Cancer,Colo-Rectal Cancer,Blood Cancer,Prostate Cancer,siva.Fatal Familial Insomnia Factor V Leiden Mutation ,Epilepsy Dupuytren's disease,Desmoplastic small-round-cell tumor Diabetes ,Coeliac disease,Creutzfeldt–Jakob disease,Cerebral Amyloid Angiopathy, Ataxia,Arthritis,Amyotrophic Lateral Scoliosis,Fibromyalgia,Fluoroquinolone Toxicity
    Syndrome Fibrodysplasia Ossificans ProgresSclerosis,Seizures,Alzheimer's disease,Adrenocortical carcinoma.Asthma,Allergic diseases.Hiv_ Aids,Herpe ,Copd,Glaucoma., Cataracts,Macular degeneration,Cardiovascular disease,Lung disease.Enlarged prostate,Osteoporosis.Alzheimer's disease,
    Dementia.
    Lupus as well.Dr Itua herbal made cure my HIV and gave me hope that he can cure all types of diseases I believed him) I do the best of myself that I can do, I went for a program in west Africa about fashion on another side I was HIV positive. I walk through a nearby village for our program schedule then I found a signage notice that says Dr Itua Herbal Center then I asked my colleagues what all about this very man called Dr Itua, She told me that he's a herbal doctor and he can cure all kind of disease i walked to him and explain myself to him as I'm a strangler out there he prepared me herbal medicine and told me how to drink it for two weeks, when I get to my hotel room I take a look at it then says a prayer before I drank it not knowing after two weeks I went to test and I found out I was negative I ran to him to pay him more but he refuses and says I should share his works for me around the globe so sick people can see as well. I'm writing a lot about him this season so that is how I was cured by drinking Dr Itua herbal medicine, He's A caring man with godly heart. Well - everything I decided all go through for me well and how you're going to treat this new aspect to your life. You don't have to suffer alone, and it's okay to ask for help. It also doesn't have to be a constant demon, as you'll get to know your body and yourself in a much deeper way than most people. Take advantage of this, as it will help you appreciate Africa Herbal Made.
    Dr Itua Contact Information.
    Email...drituaherbalcenter@gmail.com
    Whatsapp Number....+2348149277967

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  3. ALL THANKS TO DR WILLIAMS
    I was diagnosed of myeloma in 2011, I have tried all possible means to get cure but all my effort proved abortive, until a friend of mine introduced me to a herbal doctor , who prepare herbal medicine to cure different kind of diseases including myeloma , when i contacted this herbal doctor via his email, he sent me the myeloma herbal medicine via courier service, when i received the herbal medicine he gave me step by step instructions on how to apply it, when i applied it as instructed by Dr Williams i was totally cured from this disease within 1 months of usage. any body with similar problem can Contact this great herbal doctor via his email drwilliams098675@gmail.com for advice and for his product,and thanks to you admin for such an informative blog.

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